From Intolerance to Tolerance to Acceptance
Freddie has made a strong argument against viewing autism as a positive thing to be celebrated. In so doing – and keeping in mind that he is our resident liberal – Freddie argues that such views are political correctness run amok. To complete the role reversal, I, one of our two resident self-avowed libertarians, am going to argue that at least mild autism, Asperger’s, and various other disorders, including ADHD, are in fact things that society should learn to celebrate.
Freddie writes:
Autism has debilitating effects on many that have it, often with profound negative consequences for learning, self-control, communication, and the restraint of physical violence. I cannot personally comprehend the emotional toll of dealing with autism in a family– nor can I understand the depth and love found within the relationships between families with autistic members. The value of autistic people or the relationships austic people have are unquestionable. Who would want to question such things? But there is something wrong, and deeply sad, in eliding a love and respect for the people and relationships that are affected by autism into a respect for the disorder. Autistic people are beautiful. Autism is not beautiful.
For several years until relatively recently, I probably would have agreed 100% with this statement, which I think applies with equal force to other disorders such as ADHD. Before that, I would have taken the hardline approach that these “disorders” were merely excuses for some sort of moral defect (although maybe not with respect to severe autism).
I tend to think that we as a society have basically followed this evolution as well – these disorders were initially viewed as mere exuses for character flaws that should not be tolerated. Eventually, as it became clear that they were becoming more and more a problem in society and it became more evident that people had little control over these traits, we learned to tolerate those with these disorders by defining them as diseases outside of the individual’s control but that should still be something to be corrected.
But I think there’s another step that we need to take as a society – one of acceptance, rather than mere tolerance. Where I’ve come down is that at least mild forms of autism, and just about all forms of ADHD are really just unchangeable personality traits that, like all personality traits, have their upsides and their downsides but are hardwired into one’s genetic makeup. People have them in varying degrees, and when they reach a degree where they do more harm than good according to our modern society, we call them disorders. But ultimately, the problems they cause and benefits they create are a function of what our society values at a given moment. People with these traits should have access to medication and treatment that allow them to better cope with modern society; but at the same time, society should do a better job recognizing the potentially positive aspects of these disorders and providing avenues for such people to funnel their efforts in that direction.
Much has been written in recent years about the fact that diagnoses of autism, ADHD, and depression have been rapidly on the rise in the developed world. There are countless popular theories as to why this is, some more absurd than others. As for me, I think these disorders, while almost certainly hardwired from birth or infancy, are not true “defects” at all, but are instead made more apparent due to changes in our social values. After all, there is to my knowledge no clear line that separates traits that are severe enough to be labeled “autism” or ADHD and traits that are simply common. Thus, if these traits are not proving a hindrance in a person’s ability to get by on a day to day basis, they are not diagnosed; if they are, then they are diagnosed.
What is necessary to “get by” on a day-to-day basis varies across times and cultures, as do the traits that provide social benefit and value. Just as not everyone is cut out to work on an assembly line, not everyone is cut out to work staring at a computer in the middle of a cluster of cubicles.
Admittedly, in the most severe cases of autism, it’s hard to imagine the individual being able to get by on a day-to-day basis in any culture in any era. For the most part, though, people with autism, Asperger’s, ADHD, etc. probably could thrive under the right conditions, and immensely benefit society in the process. History is in fact rife with undeniably great people, particularly in the creative classes, who are believed to have had at least one of these disorders.
In viewing these as disorders to be “cured” rather than as traits that may or may not hinder a person’s ability to survive, we run the risk of losing valuable contributions. To be sure, such persons should be permitted access to medication and therapy that will allow them to better cope with their society and culture, which cannot be asked to change solely on their behalf. But a culture that is economically diversified and which not only tolerates but actively accepts those with these disorders is a culture that will find itself immeasurably benefited.
An employer who can find a way of accommodating such persons in a cost-effective way is an employer who will find themselves immeasurably benefited by taking advantage of the strong points of those with these traits. A culture that does so will find itself enriched through greater creativity, greater productivity, and an increased ability for individuals to find a niche in society that not only best suits them, but that they also best suit.
In the end, I’m ultimately with Jason Kuznicki of Positive Liberty, who writes in response to Freddie:
But there is at least one categorical rule, that of consent in social relations: If the behavior or state is desired by the person or persons experiencing it, then it’s not for you to stop by force.
Now, I don’t think Freddie would disagree with Jason’s assertion about the use of force, so in that sense Jason is perhaps being a bit unfair. But the idea that autism is something that must be “cured” is nonetheless short-sighted, failing to respect the fact that it is at least conceivable that an autistic individual might wish to remain so without having to become a burden on the rest of society. To be sure, parents should have the ability to choose (or not choose) to treat their child’s autism as they see fit; but once that child is capable of giving or withholding consent, that child’s wishes should be respected.
One final note – I mentioned above how the traits that benefit a society and/or are necessary to “get by” change over time and culture. The fact is that this will almost certainly be as true in the future as it has been throughout history. It would be truly shameful if we were to wind up “curing” something that could become necessary to “get by” at some time in the unknown distant future.
Try writing a post about how Mormons aren’t Christians sometime. The similarity in response arguments to Freddie’s post are somewhat striking…Report
I think the greatest impediment to this dialogue is that we so often think of autism as being a lesser type like Aspergers, or just shyness, or just social discomfort, etc– not, say, the child who breaks his own arms, or the one left entirely nonverbal, or the one whose behavioral disability is so great he is literally incapable of interacting in society. If we’re going to have an honest conversation, we can’t keep imagining autism to produce nothing but beautiful dreamers. That’s a big part of what I’m reacting against; the public conversation on autism has become dominated by a entirely romanticized vision of the disorder, which is profoundly different from the way most families afflicted by autism experience it. Many people with autism are not budding Einsteins having their creativity crushed by the Man; many are deeply, deeply impaired people who are being prevented from living the kind of lives they would like to be able to.
So the first step is to stop thinking that Aspergers is the correct lens to view this condition. More importantly, I think people need to stop acting as though autism is a set of personality traits, or that personality traits flow from the disorder, and recognize that what makes autism a disorder are the aspects of it that damage human lives. And I think that a tremendous disservice has been done to many people struggling with a host of mental health issues because so many people confuse mental disorders with personality traits that tend to come with them. How many violently depressed people have been chased away from using medication that could materially improve their lives, because they’ve been sold on the story that they’ll turn into some emotionless zombie by anti-depressants? And how many of them have devolved deeper into self-destruction, addiction or suicide?
Those disinclined to view autism are going to elide the disorder with the aspects of personality in autistic people that they enjoy, for the purpose of leveraging their opinion. “See, this autistic person has (positive personality trait X), why would you want to remove that?” But I don’t. I just don’t think that autism causes dreaminess or curiosity or anything of that nature. Surely, you can be dreamy or shy or unfocused and not have ADHD, or autism, and I believe it is a symptom of an over-medicalized culture that so many people believe that having personality traits similar to a mental disorder is proof positive that one has the disorder. No, I don’t want to use medication to remove artiness or dreaminess or introspection or interiority. I do want our society to privilege a view of autism that recognizes that it is on balance much better to treat people who have their lives deeply damaged by a debilitating disorder, people who can barely or cannot communicate, people who hurt themselves or others, people who can’t live with the full expression of human interaction that they otherwise would be able to. Keep the aspects of personality that you like, but don’t pretend that those aspects are somehow incontrovertibly linked to a historically quite rare developmental disorder.
By the way, since some commenters insist on strawmanning me, as I have said explicitly, I am not arguing for forcible treatment or any such thing. I am arguing for a society that has the courage to not confront all differences as if they were all of equal moral or practical content. (Which they tend not to apply to schizophrenia, or pedophilia, or a disposition towards misogyny….)Report
“Hey, all I’m saying is that not all downsy folk are like Corky on Life Goes On! I’m the victim here!”
If only the rest of us had your moral fortitude, Freddie.Report
Freddie: Thanks for the response. I acknowledge that in the cases of severe autism, we are talking about something where the individual is probably unable to function in any meaningfully independent manner – no matter what culture or time period we’re discussing. The trouble is that there’s no clear dividing line between “severe” and “mild” autism or Asperger’s – hence the reason why we refer to an autism “spectrum” rather than just one form of autism. This lack of a clear dividing line is, to my understanding, the biggest reason why diagnoses of autism have so rapidly increased over the last several decades. There is to my knowledge no reason to believe that the cases of “severe” autism have increased proportionately over the last several decades, so I honestly don’t know whether it’s still true that most parents of children labeled autistic have to deal with the severe problems you describe. What I do know is that diagnoses of autism have increased from less than 1 per 1000 in 1996 to over 5 per 1000 children in 2007, which suggests that the vast majority of children now diagnosed as autistic are probably not severely autistic.
As for the issue of encouraging medication, I think you misunderstand the argument for viewing autism as a difference rather than as a disorder. The arguments for discouraging medication are so far as I know usually made by people who think that autism, ADHD, depression, etc., are just an issue of mind over matter – they’re the real equivalent of people who insist that therapy can “fix” homosexuality, rather than you.
Those who would hold that autism, ADHD, etc. are best viewed as differences actively believe that medication is a good thing, at least in most instances, because it is necessary to get by in modern society. The view is that people who struggle with modernity, for whatever reason, should be encouraged to take steps that will allow them to get by in modernity, no matter whether their struggle is a result of a disease or a difference. They just don’t want to throw the baby out with the bathwater.
I’d also add that often times there really is no distinction between the “bad” and “good” aspects of autism, ADHD, etc. What makes someone with, for instance, ADHD particularly good at certain tasks is specifically that they’re hyperfocused on that task to the exclusion of all other things and thus unable to concentrate on other things. You can’t get the former without the latter. This doesn’t mean that this person should not try to mitigate the inherent problems of being unable to concentrate; but it does mean that they will be better able to turn their weakness into a strength if we are willing to culturally accommodate them. By culturally viewing autism, ADHD, etc. as being mere differences, we allow those labeled with those conditions to become more comfortable in their own skin and to take ownership of their condition so that can learn to better cope with that condition in a modern world.Report
Asperger’s, and various other disorders, including ADHD, are in fact things that society should learn to celebrate.
I’m proud to say that I was diagnosed with Asperger’s syndrome over at the Culture 11 blog sometime last fall. In fact, there was a consensus on that particular comment thread confirming the diagnosis. I’d never heard of it before.
So, needless to say, I’ve very happy to read that me and my ilk are to be celebrated by society. When do the festivities begin? I’ll accept any legal tender and most illegal tender as well. Let me know and … let’s party!Report
Actually, I probably overstated my case in using the word “celebrated.” I was really trying to just say “accepted.”Report
Mark:
Too bad for you. I now have “celebrated” written down and no fair going back and changing the record. What’s the problem? Does it give you the willies to celebrate me, as an Asperger’s sufferer?
Here are two photos of one of my friends and me. We’re already celebrating, so there’s nothing you can do about it. I do have a hard time relating to people, so most of my friends are hummingbirds. Here we are at the beginning of the celebrations. Report
Sorry, Roque – the good news is that I didn’t change it in the post itself, so you can go on feeling that you’re being “celebrated.” 🙂Report
Fair enough, Mark. But you’re going to have to convince my buddy (in the photos). He gets pretty wrought up about these things. I wouldn’t want to be in your shoes if he goes ballistic over this minor incident.Report
Freddie,
It would be wrong to only look at this through the lens of someone with Aspergers or mild autism, but you seem to look at this through the lens of those with severe autism as if we are all potential murderers or something. Have you actually met a person that has Aspergers or another disorder on the spectrum? Maybe if you actually spoke to some of us instead of thinking we are all the same, it might help you see this is a far more complex issue than you are making it out to be.Report
That was just for me, wasn’t it?! Brilliant!Report
Autism has been around for a while. We all know that it has turned into a global epidemic but since it is not fatal the world does not work on finding a cure as quickly as they should. Being the mother of 2 autistic children, I have been an advocate since my son was diagnosed 12 years ago. That was before I even owned a pc. I had to get help all by myself because in those days it wasn’t taken as seriously. My son received early intervention, never on meds, and on the genious side of the spectrum. So is my daughter who also suffers from Diabetes Type 1. I started the first cub scout troop in west Los Angeles for Autistic boys, and I even had some with Cerebral Palsy. I joined with other parents, us helping each other, becocming an advocate and helped “new” parents of the “tribe”. It was a career I did not choose, but paid off because my son is something, many would be amazed at if they had seen him 12 years ago. Next week he will be 14. He has illustrated a book, we have been televised, and my phone still rings with people asking for my help and of course the only payment I receive is a thank you. We’re suffering from the economy like eveyone else, but this is the type of career that doesn’t stop, and you still get paid by watching him progress. When I watched a certain model come on the Larry King show and tell the world her son was autistic to tell the world many were offened. And then to come back and say he is now cured is a joke. We all know there is not a cure. I suffer from epilepsy myself. I’ve know what extra challenges the disabled have to meet daily. Misinformed people misguiding “new” parents should not be allowed. “Crackpots” seeking attention for a television apperance using their child’s misfortune should be handled more carefully. When my son and I appeared on television two years ago, my mission was to try to let some parents know that it is not the end of the world. Sometimes, the case is so mild it cannot be diagnosed that easily. There are some people like this who have these “eccentric” habits or traits, like wearing hats all of the time and mood swings and they function in the world just fine. But if the word “autism” comes up, people are so ignorant they think the worst. Do your homework. Some of our most brillant inventors and authors suffered from the spectrum. Ever wonder why Einstein’s hair was the way it was?
🙂 lisaReport