The Mirror We Refuse to Look In
I make a concerted effort to let most of the social media back-and-forth over Rep. Alexandria Ocasio-Cortez go by without worrying to much. The digital comings and goings of the freshman rep of NY-14 just do not interest me much, and the reactions to them even less so. The coverage of all things AOC is disproportionate to her or her critics’ actual impact on day-to-day life, and understanding I only have so much bandwidth, it is an easy call to not engage. That determination comes from when I first joined Twitter, and I took a good hard look in the mirror at myself and set down some rules I try to follow, to keep such teapot tempests from spilling over into real life. Such rules were tested this week as social media got all atwitter over a video clip of the Congresswoman stating, as part of a larger point, that the VA provided the highest quality of care and punctuated it by leading the crowd she was addressing to respond “If it ain’t broke, don’t fix it.” She followed that up a few days later with comments including “Because there is a myth that all VAs everywhere are broken…If we can starve them of budgets and make sure they can’t do their job, then we can say the whole system should be thrown away. I’m not going to back down from protecting the VA.”
Now normally this is where one would segue into an op-ed on the subject at hand, using the quotes to pivot into a larger point, throw in some anecdotes, some data points, quote some other people, and make sure there is some rhetorical device threaded through the narrative to give the piece a nice arc before driving home the point at the end. A nice finished product with a start, a conclusion, a few catchy quotes, and the wider world sees a completed thought, as professional-looking as amateurs can make it. But what is needed here, and needed at the VA, is some humility and truth that there is no such thing as a nice, neat finished project when it comes to the story of Veterans Affairs.
So here, with all the humility I can muster, is the truth of how you came to read this, an honest account, not just a well-presented polished piece purporting to impart great insight and easy answers.
Fighting down my initial reaction to such a comment comes first. I remember that Alexandria Ocasio-Cortez is a person, a sitting congresswoman - youngest ever, in fact - and has lived a very different life from mine with very different experiences. She really believes what she said, and probably doesn’t know better, and hopefully wasn’t overtly trying to offend veterans who are not happy with the VA system. So deep breaths, skip the outrage, don’t make it personal, move along to the substance and avoid just hot-taking what was said. Having done that, the truth is easy enough: The VA is capable of providing excellent health care. That isn’t the issue. Is it providing excellent health care uniformly? Certainly not, not even close.
So how do I address the legion of reasons why that is? How do I do that, or at least attempt to do that?
What is not working is ripping through five thousand words across ten different drafts that I discarded at various points of frustration and anger trying to convey my point. How to write an arc into a story like the VA, a confluence of dozens of different issues both product of the giant machine of state and the intensely personal matters of life and death that are contained within? The mental strain starts getting the best of me, so I call a halt to think of some way to switch off my brain and reset.
So I go take a bath. I hate baths. I’m a shower guy, and years of living with daughters taught me the faster the better since hot water is never available when it’s my turn. But with certain issues I have, old school self-care fills in where the VA and ineffective and not-a-good-idea heavy pain meds can’t, so Epsom salt baths it is. Off goes the shirt, and then as I have a thousand times before I see myself in the mirror.
Mirrors suck. I hate them even more than baths. They are blunt, uncompromising things. But sometimes blunt and uncompromising is called for, especially when wrestling with a problem you are trying to solve, and problem solving starts with assessing yourself. Mirrors are good for that. I see plenty about the VA in my mirror. The modified mid-line laparotomy scar that goes from sternum to lower abdomen with the 30-odd staple scars running along both sides. The various laparoscopic scars, some of which have been used more than once, the chest tube scars on the sides, the J-tube scar that is more like a big splotch, the triangle hole that serves as a belly button but is version 3.0 of that, surgically constructed at the end of the fourth major surgery in as many months. The heart surgery scar above that from the pericardiectomy when they couldn’t keep the blood and fluid out of my heart lining after the second emergency surgery. You can’t see the scar tissue in my throat from the ventilator after the heart surgery when they couldn’t get me back up from anesthesia without me seizing, so they just left me down for five days before finally succeeding. Nor can I see the seventy pounds that used to be there when I was still at fighting weight that is no longer, and never again will be, on my frame.
So how do I write those memories into a piece about the VA?
I sit back against the tub, space heater blowing hot air across me, unable to get all that into a coherent thought. I fire off a tweet about emotions of the topic I’m writing getting the better of me. I know the issues of the VA. I know those surgeries saved my life. I know the back story as well. I know that my surgeon, best in the world at what he does, traveled across the street to the Durham VA one day a week from Duke, and I was fortunate enough to get him. I remember him telling me ten minutes into my first appointment what he suspected, how he thought years of misdiagnosis and a surgery I had while on active duty he feared was done incorrectly years before needed to be repaired. I remember the words “The VA cannot handle this, we have to get you to where we can treat you,” and the ten months it took to make that happen through a byzantine system of referrals, approvals, and bureaucratic nightmares. How once it was finally finished the approval people laughed and joked about how quickly it was done and how lucky I was. I remember that after the first surgery it was far worse than feared, and I remember most of the next four plus months in the hospital as they worked to fix it, minus the ventilator and surgeries of course. The anesthesia means not remembering, and the medical records and pictures of restraints make it clear that is for the best. The recovery and therapy of learning how to move, walk, and do just about everything again is still vivid. I remember, come time to go home, having fought for ten months to get approval in the first place, it took five more days of administrative nonsense to get home health care approved to release me. The irony of fighting them to get in the hospital only for them to fight to keep you in it is something some screenwriter should mine someday.
So how do I add that piece into the story, that the horribly flawed, worse run, and finally replaced VA Choice program, which while a policy debate to many, is the only reason you are reading this since otherwise I would be dead right now?
On the bathroom floor, a message comes from someone who saw my frustration tweet, a writer I respect but had never spoken to before. I vent. “There is an astounding grace and humility in saying ‘I’m in the middle of this and even I can’t figure it out’,” comes the reply.
Good advice, and it has the benefit of being true. I’m in the middle of the VA debate, and I have no idea what the answers are. In fact, I’m convinced there isn’t an easy, simple one. There isn’t even a good way to quantify the problems.
Maybe use a bunch of stats and numbers to show that despite more than doubling the budget for the VA over the last ten years, the system is deluged in patients, crippled in staff shortages they cannot fill, and hamstrung by a bureaucracy that grows as fast as the issues.
Maybe point out that just this month three veterans committed suicide on the grounds of VA facilities, making it at least 22 in the last 18 months to do so. Maybe also point out that those 22 are just a fraction of the estimated 6000 a year, and that the suicide rate among VA patients is higher than that of veterans who are cared for elsewhere.
Maybe point out that the quality of care received doesn’t matter a bit if the veteran cannot navigate the benefits and claims system in an expedient manner in the first place, or can’t get an appointment in a timely fashion, or needs a referral to a specialty that isn’t available or only available far away.
Maybe point out that the plight of veterans is really popular to use when a politician says something wrong, or a football player kneels, or some other political issue of the day needs draped in the flag to make its point more emotionally investing, but the rest of the time America as a whole seems pretty content to do nothing substantial about it. If that seems cold, so sorry, but evidence demands a verdict and if things haven’t improved over different congresses and different presidents and different eras the problem does not lie solely at the feet of politicians of either party but with all of us. Otherwise we would make them do something about it.
The truth is the government can no more fix the VA than I can fix it from my bathroom floor.
Veterans Affairs is the government, and it is us too. The two are inseparable, and that is the problem. The VA is where all the fantastic ideology and political, economic, healthcare, and social theories go to die, a living example of their limits. Are you a proponent of socialized, government-run, or single-payer healthcare? VA has the good and bad of that. Think government should keep its promises regarding benefits? VA has the good and bad of that. Have strong thoughts of the role of government in healthcare? VA has the good and bad of that. Which is why anyone using the VA as the example for their ideology is going to have to, at best, cherry pick their examples. So most don’t, refusing to look at the mirror the VA is reflecting back at us as a country. Those theories have good and bad points, and their limits are in full view within the VA system. The most powerful forces in government are a combination of mild neglect and inertia inherent to the behemoth of a huge federal government, of things continuing to grow and self-propagate with little outside force to change. Thus you have very bad things entrenched into an institution that has a noble purpose and good intentions, the latter good parts being the excuse to not change the former problems. This leaves little to no real recourse to correct it.
Debate over Veterans Choice, and the larger one of how much if any privatization the VA may use to try to address some issues, is chasing symptoms but will do little to cure the problem. Choice, or whatever outside referral program is tried, is still going to be administered by the VA. It will be a political football for all time, as the VA itself is, subject to the whims of congress critters who will speechify how voting for X number of dollars proves they care. It will still be a cabinet position appointed by whomever is president, overseeing the second largest department of government.
You did know that, right? That the second largest part of our federal government, after its first cousin the Department of Defense, is Veterans Affairs. It’s growing by the minute, nearly as big as the next two largest departments put together. It takes that much of Washington to care for 18 million people the way the VA does it. And it’s a shambles most of the time. But it is a necessary shambles, for good or ill, since it was promised to the people who rely on it. Until the day it is replaced with something better, and I’m skeptical of that, the VA is it for the 18 million veterans our country has and the 9 million that stream through the doors of VA healthcare each year.
Blaming the “them,” the government and politicians, for the mess at the VA is the base alloy of VA dysfunction. Reagan’s oft-quoted line about government being the problem has merit, but it’s half the story. Having a representative democracy means we have the government we chose. And allowing something to continue without change is the same as choosing. It’s easier to blame the dysfunction than look in the mirror of what our chosen government is doing and realize our own hand in it.
How the VA is administered affects far more than just veterans. If we want to have a national conversation on healthcare for the 320+ million of us - and specifically government’s role in that - we should take a long, hard, honest look at how that same government is currently struggling with only the 9 million who use VA healthcare system each year. Most of those veterans are dependent on the VA for more than just healthcare and a benefits check, and how our government treats those dependents is a fair judgement of how it will treat the rest of us.
There are no easy answers to the future of Veterans Affairs. There are plenty of problems still beneath shining exteriors of the multitude of brand new facilities VA is building across the country. Throwing more and more tax payer money at it isn’t the answer, nor is abandoning the leviathan to its fate. Whatever the answers are, it will start with a humbling and honest look at what the VA is, and isn’t, what it was meant to be and what we have allowed it to become. Then, and only then, can we figure out the right path to what it should be, and make it about actually caring for those who have borne the battle, and not just a partisan battle over who can appear to care more.
Aren’t there studies looking at outcomes that show the VA doing as well or in some cases better than regular health care? When I worked in the VA, I was struck that, yes, it did not emphasize the speediness of throughput that the private system does, but its clientele tended toward lower socioeconomic strata which is why they sought out the VA in the first place. Also, slowness isn’t always bad. A friend had three back surgeries in the private system. Each time he was out the same day and given a referral to a physical therapy provider in a different site. His pain continued. He got into a VA program which sent him to a hospital far away specializing in back problems. He was there for six weeks with daily rehab. He is fine now. No private insurance in America gives six weeks of in-patient rehab.
Of course, there are issues, problems, and failures at the VA as in every other system. We should be vigilant for problems, but in fact the VA does pretty well for many.Report
The primary cause of doubt for outcome studies is the same reason the 2014 scandal was such a issue: when there is wide-spread changing, removing, or just ignoring data that makes the system look bad to protect positions, budgets, and status of those administering it, everything comes into question. And fairly so.Report
The VA here in Portland is known to cook the books to make things look worse. The goal seems to be getting more money.Report
I have never personally interacted with the VA, but that doesn’t stop me from offering my own anecdote
The father of a very close friend is a Korean War veteran. He lives just outside of Waco, TX. He is almost 90, with mild dementia, heart problems, breathing problems, and mobility problems. In the last three years he’s had four surgeries, including two heart surgeries. All this medical care provided by the VA.
This is far more health care than most people could dream of in America, and much more that his family could arrange for without the VA.
I’m sure there are tons of problems with the VA, but there tons (probably a larger number of tons) of problems with health care for those that cannot access the VA. Like the NHS on the UK, it’s probably the worst health care delivery system except for all the rest.
Honest, non snarky, question: I wonder if PTSD might not be a major contributor to the feelings -probably not the right word- of frustration of many VA users, and might make the system look or feel worse than what it really is. Killing yourself, as you describe, is not how most non-veteran people react to care denials from insurance companies.Report
I would argue that that’s exactly why veterans need special care. Their issues are not like those that most of the rest of us deal with. As far as the great care some receive from the VA, I imagine it all varies by location and staff, as with most things. There are systemic issues though, and that is undeniable.Report
I fully agree that PTSD is a (or THE) major difference between veterans and the general public, and, therefore, PTSD considerations should be very high up in how the VA manages their patients.
But, not an excuse, but a partial explanation, recognizing PTSD as a serious metal/physical problem and concern is something very new at all levels, and for which we, as a society, still don’t have the proper procedures clear. Barely a hundred years ago, shell-shocked soldiers faced the firing squadron as “cowards” .Report
@j_a But there’s also this:
“the suicide rate among VA patients is higher than that of veterans who are cared for elsewhere.”
I don’t think that’s adequately explained by your suggested partial explanation.
(I also think the idea that PTSD is the major difference between veterans and non-veterans fails to recognize how very common non-combat PTSD (and especially c-PTSD caused by serial childhood abuse) is in the “general public”, veterans and otherwise. But that’s probably too off-topic for this post…)Report
I think PTSD is just a species of anxiety disorder triggered by trauma, which isn’t unique to vets. Back in the oughts, my therapist-wife was seeing some national guard members back from deployments through Tri-Care (which I believe is not VA, but DOD?). One of the things I remember her mentioning was she would get fairly regular e-mails through Tri-Care about ongoing PTSD research, particularly whether it might be caused by concussions and giving her resources. And the concussion angle is related to the sports injury area. And I don’t know that she was necessarily seeing someone for PTSD at any given time, once she was approved by tri-care as a provider, she was in their system.
So I think its more that the military has particular interests, resources and networks that may be unique, and might improve our knowledge base and outcomes. But all that doesn’t have to relate specifically to a VA building.Report
The thing to remember about the VA is that once you have navigated the bureaucracy and you become a ‘known quantity’, the VA works very, very well.
It’s getting to that point that can be hell, especially if what you need is not something the VA can do, or is very good at. The system is very resistant to seeking outside help to treat it’s members, with a handful of exceptions*.
*The VA hospital in Madison was connected, literally, via a skywalk, to the UW Medical school. UW Doctors and Med students would take rotations at the VA in order to help out, and the two hospitals had longstanding cooperative agreements so should a VA patient need help at the UW, they could be seen over there with a minimum of fuss.Report
This is how Duke University/Durham VA is, across the street from one another, and the latter full of residents and interns getting extra work in. Which is a good thing for Durham, but not a replicatable system for the rest of the country with few exceptions.Report
Yep, and when it can be done, it can work exceptionally well. But it can’t be done everywhere. One nice thing is that (at least back in my day) VA hospitals can transfer patients within the system relatively easily. So if a vet in Milwaukee would be better served by the UW hospital in Madison, the Milwaukee VA could transfer the vet to the Madison VA, who could then get them seen by the UW pretty easily, rather than having the Milwaukee VA try to get the vet into the UW directly.
But of course, the vet would have to be able to travel the hour one way to get to Madison from Milwaukee.Report
This of course gets complicated in rural areas. I was at a family event last weekend back home which had rented out the local senior center, and I was reading on the bulletin board all the different notices for veterans for transportation, since the two closest facilities are 58 and 79 miles away, respectively. The VA does compensate mileage, but you can imagine how problematic this is for those too old/infermed or without reliable transportation to do for simple appointments.Report
Yep, which often means a choice between living close to family & friends, or living close to the hospital.
One of the dumbest rules the VA has is the whole distance from care rule, which essentially locates a VA hospital and draws a big circle around it, and says “if you live inside the circle, you have to go to the VA before you can go to a private doctor.”, which is great, if you live in, say Kansas City. Near Seattle, the VA hospital is in Seattle, which sucks for people in, say, Bremerton, who now have to take an hour ferry ride to see their doctor.Report
But this is not a VA problem, it’s a deliver health care to rural communities problem.
No matter how good the VA ever gets to be, there will be many people who are far away from a VA hospital. The fact that rural communities provide a large part of the armed forces for various reasons just makes the problem worse.Report
I both love and loathe the VA. There were there when I needed them, to rehab my body, and my career. And the people in the VA are awesome, even though they are so constrained by the bureaucracy.
But that bureaucracy… I recognize that there are a lot of good people there, which is why I only interact with them when it is absolutely necessary, so that I am not taking up time and resources that other people need way more than me.Report
The possibly hardest thing that the VA has the manage these days is that there are two main and very distinct patient tracks. There are all the recent veterans, with service related problems as a result of injuries received in Iraq and Afghanistan*.
And then there is the Vietnam era cohort, which is *huge* (much larger than the recent vet numbers) and whose main problem is that they’re all now in their 60s and 70s and having the medical issues related to being in their 60s and 70s (and which may be caused, amplified, and/or correlated with being in Vietnam, but also most likely just being in the socioeconomic status who got drafted in that era)
*and other places, but these are the overwhelming majorityReport
Elderly are rushing it, but also new type of patients the VA has had to redo how they do things to accommodate. Women’s health, many of them younger veterans, is one of the faster growing areas, and has had to be built nearly from the ground up over the last 20 years or so.Report
Sitting in another part of the federal bureaucracy I’ll start my response with my usual, tired but still too often necessary plea – lets not discuss government as if the executive, legislative and judicial branches are some monolithic thing. Congress is the “government” and much of what federal agencies including the VA does is directly attributable to the vagaries of the debates and decisions of 535 people on Capitol Hill. The VA professional staff (from the Secretary on down to the custodians) are “the government” who are all filling important, overworked, and often unsung roles to keep the VA going. Sure, both rely on the other to complete the relationship and get the thing done, and you all may well be frustrated with both. Nonetheless, expressing your outrage at the appropriate part of government will actually go a long way toward solving these issues.
Having said that – there’s no good way to fix whats only partially broken, unless we want to get serious about what we fund with tax money (which is revenue in government) and to what extent. As noted upthread, the VA deals with a somewhat medically and psychologically unique patient base, and as a result has to provide services that would span a great range of sub-specialities out here in the civilian world. That costs money, which must come to the federal government from taxes. While no one will tell the VA to cut services in a tax debate, reducing tax rates and running the debt and deficit further up does impact the revenue stream the VA has to rely on. Unlike the Southern Border Wall which the President promised us Mexico would pay for, we can’t bill the Taliban or ISIS fro the cost of fighting them. That’s squarely on us, and to pretend the VA has all the revenue it needs is folly.
The VA’s failures and disincentives are also well documented bureaucratically, though I have yet to see anyone take on the herculean task of analysis of Congressional action (particularly budget) and its impacts. Our agency budget has essentially been flat since Bush II, which amounts to a 3%-3.5% cut per year due to inflation, and with operating costs (non-labor) escalating at a significantly higher rate. Thankfully the VA’s budget has done better in both absolute and inflation-adjusted dollars, but the population it serves has ballooned, and its non-labor cost are not shrinking either. It was also properly pointed out that many VA patients live in rural America, where their medical options are already limited due to distance form VA facilities, and rural hospital and clinic closings (which are on the rise).
Sadly, however, we who rely on the stitched together system of private insurance and private medicine don’t do much better. Sure, you may be able to see your local doctor sooner, but your care won’t be any better, you may have long waits for a specialist, and you will still be subject to strict rules (generally financially based) about when, for how long, and under what treatment regimes you can see specialists even when referred. The only reason the matching inefficiencies of the private system aren’t as easy to see as the VA system is that non-VA healthcare is disaggregated. Trust me, however, those inefficiencies exist.
Finally, all of this avoids completely the subject of why we have such a growing veterans population, needing ever broader terms of care. That’s definitely a political debate which I believe falls squarely on the shoulders of Congress, who refuse to check the President’s powers of the use of military force (and have for some time). The longer we are in indeterminate, semi-permanent wars, the greater the need for VA services remains.Report
“. Sure, you may be able to see your local doctor sooner, but your care won’t be any better”
That’s…. not true. Seeing a doctor *sooner* often *means* better care all by itself. Most illnesses and injuries get progressively worse over untreated time.Report
Thank you for writing this post, and thank you for writing it from a place of such vulnerability and openness.
This is the kind of writing that keeps me caring for this site (both emotionally and literally).Report
Thank you for writing this post, and thank you for writing it from a place of such vulnerability and openness.
+1. I’m still chewing on the piece and how (and if) I want to respond to it further, but it’s very good.Report
+2 amazing piece but so utterly outside my experience that I can’t think of much to comment regarding it.Report
This is a beautiful piece Andrew. Thank you.Report
Thank you KristinReport
I watch the struggles of my veteran friends & their troubles with the VA Hospital in Temple. I’ve asked them what they think would do the system the most good & get back answers such as ‘slim down the bureaucracy’ or ‘quit paying bonuses for succeeding at actively clawing back veterans’ awarded percentages.’ Usually ‘and stop over-medicating’ comes up too. None that I personally talk to would recommend going to the VA if a vet has any other sort of medical coverage to rely on. But there are no easy workable answers, that’s part of the big problem. As long as we think we’re doing our part (and our continued involvement stops there) by throwing more money into a juggernaut, the VA system won’t find an internal reason to shape up. Why should it? It never had to before to get it’s budget, why should it start now?Report
The scale of the VA relative to other government departments is not surprising to me.
Alberta has a population of about 4.5 million, and the provincial government has a staff count of about 30,000, for all provincial government services. Alberta health services, which provides very nearly all the healthcare in the province and basically no other service, has 110,000 staff.Report
I think the best question here, and one the above are disseminating from, is:
Is the VA a good model for Medicare for all / Universal health care coverage in the US?
To me, it is striking that the typical ‘wonk’ talking points for and against such a system are starkly noted within the experiences of just a few random people who frequent this website.
For:
The VA does help people!
The VA provides services and has people working within the system to change lives!
The VA is cost effective to the user (not much talk about cost of care, but that is a secondary point)
Against:
The VA is a bureaucratic nightmare for most
The VA fails people on a regular basis
The VA cannot always provide the right care for the patient
As someone who has healthcare, I’m a nope nope nope to that option. As someone who doesn’t have healthcare or cannot afford it? Sounds pretty great.Report
This was a very nice piece, Andrew.Report
Thank youReport