70 Years of “HeLa” Cells Debate Ends in Settlement For Henrietta Lacks Family

Andrew Donaldson

Born and raised in West Virginia, Andrew has been the Managing Editor of Ordinary Times since 2018, is a widely published opinion writer, and appears in media, radio, and occasionally as a talking head on TV. He can usually be found misspelling/misusing words on Twitter@four4thefire. Andrew is the host of Heard Tell podcast. Subscribe to Andrew'sHeard Tell Substack for free here:

Related Post Roulette

8 Responses

  1. Brandon Berg says:

    To the best of my understanding, there is no evidence that Lacks was harmed by the use of her medical waste, nor, AFAICT, is there any question of her having been given substandard treatment. If she had been offered $50 in exchange for the rights to conduct research on said medical waste, she almost certainly would have taken it, because it was literally less than worthless to her, and made valuable only by the expertise, efforts, and investments of others.

    It’s not entirely clear to me what her value over replacement was. What percentage of cancers have the same ability to replicate indefinitely in vitro as hers? 90%? 10%? 1%? It’s a shame that she died so young, of course, but the idea that her family is entitled to any sort of compensation is insane, and emblematic of how far off the rails this race hysteria has gone.

    Also, was there supposed to be a link in this post?Report

    • Jaybird in reply to Brandon Berg says:

      Yeah, but the whole “without her consent” thing hits different in the current year than in 1951.

      Back then, it was just some more medical waste that had some properties that made it useful for medical research.

      Today? How much profit has medical science raked in due to this property taken without consent? How much of this profit is she therefore entitled to?Report

    • Philip H in reply to Brandon Berg says:

      Ha.

      No seriously that’s funny.

      Morbidly, insanely, stupefyingly funny.

      Tell me, do the Tuskeegee Institute test subjects families deserve compensation? Of the descendants of black slaves who were experiments on by white doctors without anesthetic?

      Or this?

      As recently as the 1990s, unethical medical research involving African Americans has been conducted by highly esteemed academic institutions. For example, researchers at a prestigious U.S. university recruited African American boys into a study that hypothesized a genetic etiology of aggressive behavior. Through the use of monetary incentives, they were able to convince parents to enroll their sons in a study that included withdrawal from all medications (including asthma medications), ingesting a mono-amine (low protein) diet, an overnight stay (without parents), withholding of water, hourly blood draws, and the administration of fenfluramine, a drug known to increase serotonin levels and suspected to be associated with aggressive behaviors. In addition to these methods, several other significant human subject violations were cited, including restricting the recruitment to Black children.40 It is fair to ask whether mistreatment of African Americans that has occurred more recently than the Tuskegee syphilis study is exacerbating mistrust today.

      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4354806/

      Or are you so callous that you just don’t care, regardless of race or gender?Report

      • LeeEsq in reply to Philip H says:

        BB can’t stand the fact of peons of any race getting something for their exploitation. All belongs to the corporations and entrepreneurs. A human whose body is harvested is nothing more than an organic mine for the great people.Report

      • Brandon Berg in reply to Philip H says:

        I would absolutely support compensation for any surviving subjects of the Tuskegee Syphilis study who were harmed by withholding of diagnosis or proper treatment, and possibly to their children; probably not to their grandchildren, though I’m open to non-stupid arguments about why they should. There are tricky questions about how long these kinds of debts should persist, as the indirect harm to subsequent generations is greatly attenuated over time. Should I get compensation from the British on account of my partial Irish ancestry? I don’t think there’s any reasonable argument that I should.

        The key difference here is that the Tuskegee subjects were harmed by the research, and Henrietta Lacks was not. I’m not an oncologist, but I’m pretty sure that leaving more cancerous cells in her body would, if anything, have worsened her chances of survival. There seems to be a general consensus, even among those pushing for “compensation,” that she was treated according to the standard of care of the time.

        Well what about all those black people who were harmed by unethical research? My evaluation of a particular case depends on the actual facts of the case. If the facts are different, my evaluation is different. It seems that you have a more narrative-driven approach, which I find somewhat worrying, given that you claim to be a scientist.Report

  2. CJColucci says:

    Informed consent violations don’t depend on the race of the patient unless there is a practice of obtaining informed consent from white patients and not bothering with black patients. I don’t know whether that claim was involved in this case, which, if true, would be pretty much inexcusable. A hospital might well pay far more than a case is “worth,” see next paragraph, to avoid airing such dirty laundry.
    That angle aside, how much injury Henrietta Lacks suffered would go to the question of damages, not liability. You can’t take a pair of socks out of my sock drawer without my consent, even if I would have sold them to you for 20 bucks if you had asked. And you couldn’t take them even if you offered me 50 bucks and I refused. Would I sue about it? No, not even when I could do it myself and not pay a lawyer, but someone else’s mileage may vary.Report

  3. Chip Daniels says:

    In this day and age of data harvesting, the idea that trivial things like bodily fluids can accrue financial value, and that others need your consent to derive that value shouldn’t be debatable.Report